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Celebrities join famous Hollywood producer's campaign for a cure to his daughters' deadly rare disease
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Gordon Gray, the Hollywood producer behind many inspirational sports films like the Miracle, Million Dollar Arm and The Rookie, has launched a campaign to raise funds to find a treatment for his two young daughters, who were both diagnosed with a very rare, fatal disease. In the video produced for the campaign's promotion, they shared the healthy lives their daughters had been living until they were found to be suffering from the Batten disease.
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Highlights
Catholic Online (https://www.catholic.org)
6/11/2015 (8 years ago)
Published in Health
Keywords: Fundraising Campaign, Social Media, Gordon Gray, Daughters, Disease, Brain, Rare, Treatment, Batten Disease
MUNTINLUPA, PHILIPPINES (Catholic Online) - Now, celebrities like Amanda Seyfried, Channing Tatum and John Hamm have posted about the campaign, asking fans to donate at least $1, according to The Daily Mail.
Gray and his wife, Kristen, are now seeking treatments for Charlotte, 4, and Gwyneth, 2. The couple has contacted the person claiming to have the initial steps for the cure to the rare disorder. Misdiagnosed with autism and Leukodystriophy, a degenerative disease, Charlotte previously underwent gene sequencing at the UCLA where they found that she was really suffering from another disorder.
Although doctors and speech therapists initially told the parents there was nothing to be worried about, the couple suspected otherwise after Charlotte had tripped over a present and had her arm shake like a toddler regained footing.
The geneticist explained to the parents that the disorder has no cure and is fatal, but the couple was determined to save their children. Unfortunately, they found that their younger daughter has the same disease, leaving them heartbroken with more bad news after the diagnosis.
Only ten people around the globe have been diagnosed with the Batten disease; as of today, it is said that those affected with the disorder only live to about 6-12 years old.
Right now, the research for a cure is limited but there's a doctor in New Zealand who claims he performed successful medical research on the disease through animal trials. The doctor believes he could find the cure for humans, given the proper funding.
"I'm never going to give up hope, or give up fighting. I have to believe that I'm going to save my girls," said Gordon Gray.
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