Skip to content

Medical migrant ordered to leave gets hope of reprieve, highlights similar cases

Free World Class Education
FREE Catholic Classes

By Matt Hadro
9/23/2019 (3 weeks ago)
Catholic Online (https://www.catholic.org)

An immigrant who has lived in the U.S. for more than 16 years while receiving life-saving medical treatments is hoping for a reprieve after being given weeks to leave the country. 

Medical facility

Medical facility

Highlights

By Matt Hadro
Catholic Online (https://www.catholic.org)
9/23/2019 (3 weeks ago)

Published in U.S.

Keywords: IMMIGRATION, WASHINGTON D.C., US


Washington D.C., (CNA) - An immigrant who has lived in the U.S. for more than 16 years while receiving life-saving medical treatments is hoping for a reprieve after being given weeks to leave the country. 

Maria Isabel Bueso, a 24 year-old immigrant from Guatemala, has lived in the U.S. without citizenship since 2003 through temporary extensions of "deferred action," or delays of deportation, so that she can stay and receive treatment for her rare medical condition.

Bueso traveled from Guatemala to the U.S. with her family in 2003 to participate in clinical trials for her rare genetic disorder. After more than 16 years, she was notified in August that she would not be able to renew her status in the U.S. because the administration would stop considering non-military requests for deferred action. She was given 33 days to leave the country.

On Sept. 19, the U.S. Department of Homeland Security (DHS) announced that it would resume granting non-military deferred action on a case-by-case basis, 

Bueso was "thrilled" by the news, her nurse, Wendy Bloom, told CNA, but remained only "cautiously optimistic" until she has full certainty of her status and hopes her case will draw attention to the plight of others like her.

"She's really nervous until she actually gets an official letter that says 'you are allowed to stay here,' then she'll be ready to have a party," Bloom, a member of the California Nurses Association, told CNA.

Bueso has become an advocate for other patients with rare diseases - some of who needed to travel from outside the U.S. for treatment.

She has Maroteaux-Lamy Syndrome (MPS-VI) which is a rare genetic disorder, and was invited to the U.S. at age seven to participate in clinical trials conducted by Dr. Paul Harmatz at Children's Hospital and Research Center in Oakland, California.

Bueso traveled to the U.S. on a B-2 visa with her family, and has since remained in the country for weekly treatments. Bloom says she has known Bueso for 13 years, and that Bueso has been coming to the hospital for almost 17 years.

After she initially participated in clinical trials for her condition, that program helped develop a commercial drug Naglazyme that is now used to treat patients with MPS-VI.

In 2009, Bueso applied for and was granted deferred action of deportation, with a renewal every two years.

Several weeks after her notice to leave the U.S., Bueso testified before the House Oversight Subcommittee on Civil Rights and Civil Liberties at a hearing held on September 11 on "The Administration's Apparent Revocation of Medical Deferred Action for Critically Ill Children."

"The medical treatment I need is not available in Guatemala. If I'm sent back, I will die," she told members of the subcommittee. Bloom explained that the treatment is expensive and requires special skills to administer; Bueso would not be able to receive the necessary treatment in Guatemala.

On Sept. 2, DHS had announced that it would review the change in policy for "deferred action," but Bueso's status was still in limbo.

"It was incredibly stressful for the family, incredibly stressful, and for all of us that care for her and love her too, it was really heartbreaking," Bloom said.

Then on Sept. 19, DHS informed the House Oversight Committee that it would once again consider deferred action on a case-by-case basis for non-military immigrants in the U.S.

In the statement, DHS said that USCIS would resume consideration of "non-military deferred action requests on a discretionary, case-by-case basis, except as otherwise required by an applicable statute, regulation, or court order."

Oversight Chairman Rep. Elijah Cummings (D-Md.) stated in response that "it appears that the Trump Administration is reversing its inhumane and disastrous decision to deport critically ill children and their families who are receiving life-saving medical treatment in the United States."

The decision draws attention to the importance of allowing immigrants like Bueso to come to the U.S. for treatment.

"Medical research needs to be ongoing, and if we can't have the type of patients enrolling in these studies then we have a problem," Bloom said.

---


'Help Give every Student and Teacher FREE resources for a world-class Moral Catholic Education'


Copyright 2019 - Distributed by THE CALIFORNIA NETWORK


Comments


More U.S.

New York will get statue of Mother Cabrini Watch

Image of

New York Governor Andrew Cuomo has announced the state will erect a statue of St. Frances Xavier Cabrini. New York City, N.Y., (CNA) - New ... continue reading


Indian archbishop, parish priest killed in California car accident Watch

Image of Bishop Zuchetto

Archbishop Dominic Jala of Shillong, India and Fr. Mathew Vellankal died in a car crash Oct. 10 during a visit to the Diocese of Oakland. ... continue reading



Why Christians Can Celebrate Halloween - and Evangelize the Culture Watch

Image of My grandson Noah dressed up as the Incredible Hulk

The Church has often taken secular holidays and, in a sense, baptized them, as a means of infusing the values of the Gospel into the ... continue reading


Texas Knights of Columbus work with Mexican Knights to aid migrants Watch

Image of Members of the Knights of Columbus help to deliver supplies to the Casa de Migrantes in Ciudad Juarez Mexico

Following an August announcement from the Knights of Columbus that the group would commit at least $250,000 to aid migrants at the ... continue reading


Praying for souls, and runs: The parish serving Washington's baseball fans Watch

Image of

In a rapidly-gentrifying Washington, D.C., neighborhood, a historic parish is putting the New Evangelization into practice by reaching out ... continue reading


Never Miss any Updates!

Stay up to date with the latest news, information, and special offers.

FREE Catholic Classes Pick a class, you can learn anything

Catholic Online Logo

Copyright 2019 Catholic Online. All materials contained on this site, whether written, audible or visual are the exclusive property of Catholic Online and are protected under U.S. and International copyright laws, © Copyright 2019 Catholic Online. Any unauthorized use, without prior written consent of Catholic Online is strictly forbidden and prohibited.

Catholic Online is a Project of Your Catholic Voice Foundation, a Not-for-Profit Corporation. Your Catholic Voice Foundation has been granted a recognition of tax exemption under Section 501(c)(3) of the Internal Revenue Code. Federal Tax Identification Number: 81-0596847. Your gift is tax-deductible as allowed by law.