Indonesian man concentrates on curing bizarre skin disease to spare kids same fate
Known as 'bubble skin man,' father worries when his children exhibit the same symptoms
Fifty-seven-year old Chandra Wisnu, before he married his wife of 33
years, noticed strange, pink bumps growing on parts of his body.
Eventually, the bumps overtook the entire surface of his body, giving
him the dreaded nickname of the "bubble skin man." Living most of his
life between closed doors, he has come forward in public in order to
address the disease, as his own children have begun to exhibit similar
Keeping himself locked inside his home so no one could see him and his pink tumors, 57-year old Chandra Wisnu wore three jackets, a balaclava and sunglasses so he wouldn't frighten children the times he did leave the house.
Keeping himself locked inside his home so no one could see him and his pink tumors, he wore three jackets, a balaclava and sunglasses so he wouldn't frighten children the times he did leave the house.
"People are afraid, they are frightened of my horrible face and worried they might catch the disease," he told reporters. "So instead I avoid people, I rarely go out except to pick up my daughter from school. And when I do I cover my head and my face because I don't want my daughter's friends to bully her for having 'the dad with the horrible face'."
Wisnu is hoping to finally find a cure, mainly because his two children are starting to show signs of the same condition.
In a documentary about his condition, Wisnu's wife declares "You're still handsome," and insists she was not disappointed by his appearance.
Wisnu's parents took him to see a number of doctors and dermatologists in the early stages of his disease who were baffled by the severity of his symptoms.
Some doctors told him the condition was genetic and possibly caused by an abnormality in the nervous system. Wisnu had given up hope he'd ever find a cure.
"There was no special treatment for my disease," he told reporters. "I was just told to see one dermatologist after another because they did not know how to treat me."
He is now speaking out about his situation in hopes of helping his kids, two of whom are showing signs of developing the condition, according to Anorak.co.uk.
"They only have some small tumors now but they worry they will get worse," he said. "If there is a chance to get such kind of free medication, I will take that chance, but right now my family is all the treatment I need."
© 2012, Catholic Online. Distributed by NEWS CONSORTIUM.
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Pope Benedict XVI's Prayer Intentions for January 2013
General Intention: The Faith of Christians. That in this Year of Faith Christians may deepen their knowledge of the mystery of Christ and witness joyfully to the gift of faith in him.
Missionary Intention: Middle Eastern Christians. That the Christian communities of the Middle East, often discriminated against, may receive from the Holy Spirit the strength of fidelity and perseverance.
Keywords: Indonesia, bubble skin man, dermatology, cure
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