Skip to main content


Indonesian man concentrates on curing bizarre skin disease to spare kids same fate

Known as 'bubble skin man,' father worries when his children exhibit the same symptoms

Fifty-seven-year old Chandra Wisnu, before he married his wife of 33 years, noticed strange, pink bumps growing on parts of his body. Eventually, the bumps overtook the entire surface of his body, giving him the dreaded nickname of the "bubble skin man." Living most of his life between closed doors, he has come forward in public in order to address the disease, as his own children have begun to exhibit similar symptoms.

Keeping himself locked inside his home so no one could see him and his pink tumors, 57-year old Chandra Wisnu wore three jackets, a balaclava and sunglasses so he wouldn't frighten children the times he did leave the house.

Keeping himself locked inside his home so no one could see him and his pink tumors, 57-year old Chandra Wisnu wore three jackets, a balaclava and sunglasses so he wouldn't frighten children the times he did leave the house.

LOS ANGELES, CA (Catholic Online) - Strange small bumps on his back that that looked like tiny bubbles when he was 19 were the beginning of Wisnu's ordeal. The bumps covered his entire body by the time he was 32.

Keeping himself locked inside his home so no one could see him and his pink tumors, he wore three jackets, a balaclava and sunglasses so he wouldn't frighten children the times he did leave the house.

"People are afraid, they are frightened of my horrible face and worried they might catch the disease," he told reporters. "So instead I avoid people, I rarely go out except to pick up my daughter from school. And when I do I cover my head and my face because I don't want my daughter's friends to bully her for having 'the dad with the horrible face'."

Wisnu is hoping to finally find a cure, mainly because his two children are starting to show signs of the same condition.

In a documentary about his condition, Wisnu's wife declares "You're still handsome," and insists she was not disappointed by his appearance.

Wisnu's parents took him to see a number of doctors and dermatologists in the early stages of his disease who were baffled by the severity of his symptoms.

Some doctors told him the condition was genetic and possibly caused by an abnormality in the nervous system. Wisnu had given up hope he'd ever find a cure.

"There was no special treatment for my disease," he told reporters. "I was just told to see one dermatologist after another because they did not know how to treat me."

He is now speaking out about his situation in hopes of helping his kids, two of whom are showing signs of developing the condition, according to Anorak.co.uk.

"They only have some small tumors now but they worry they will get worse," he said. "If there is a chance to get such kind of free medication, I will take that chance, but right now my family is all the treatment I need."

© 2012, Catholic Online. Distributed by NEWS CONSORTIUM.

- - -

Pope Benedict XVI's Prayer Intentions for January 2013
General Intention:
The Faith of Christians. That in this Year of Faith Christians may deepen their knowledge of the mystery of Christ and witness joyfully to the gift of faith in him.
Missionary Intention: Middle Eastern Christians. That the Christian communities of the Middle East, often discriminated against, may receive from the Holy Spirit the strength of fidelity and perseverance.

Keywords: Indonesia, bubble skin man, dermatology, cure

NEWSLETTERS »

E-mail:       Zip Code: (ex. 90001)
Today's Headlines

Sign up for a roundup of the day's top stories. 5 days / week. See Sample

Rate This Article

Very Helpful Somewhat Helpful Not Helpful at All

Yes, I am Interested No, I am not Interested

Rate Article

1 - 2 of 2 Comments

  1. mgm.
    11 months ago

    Susan.This man might not have any medical insurance ,and with a obvious preexisting condition would for sure be refused insurance by American companies or be charged premiums so high he could never afford it. So you might as well say he has a good of chance getting medical care on the moon let alone Boston.

  2. Susan
    11 months ago

    There must be help for him somewhere. What about our great hospitals here in Boston, Massachusetts: Massachusetts General Hospital; Brigham & Women's Hospital; Tufts New England Medical Center; Beth Israel Deaconness, etc. I pray someone will come forward to help this man and his family. Thank you.

Leave a Comment

Comments submitted must be civil, remain on-topic and not violate any laws including copyright. We reserve the right to delete any comments which are abusive, inappropriate or not constructive to the discussion.

Though we invite robust discussion, we reserve the right to not publish any comment which denigrates the human person, undermines marriage and the family, or advocates for positions which openly oppose the teaching of the Catholic Church.

This is a supervised forum and the Editors of Catholic Online retain the right to direct it.

We also reserve the right to block any commenter for repeated violations. Your email address is required to post, but it will not be published on the site.

We ask that you NOT post your comment more than once. Catholic Online is growing and our ability to review all comments sometimes results in a delay in their publication.

Send me important information from Catholic Online and it's partners. See Sample

Post Comment


Newsletter Sign Up